Thursday, February 1, 2018
I've known that Maggie suffered from something that I didn't understand, she is sometimes able to attend book club, and sometimes not. When she does attend her spirit is high but physically she's tired, and not just normal tired, bone-tired. She told us that she suffers from ME, or Myalgic Encephalomyelitis (formerly referred to most commonly as Chronic Fatigue Syndrome), but I didn't really know what that meant in any meaningful way.
So I watched Unrest yesterday afternoon and what an eye-opener it was. What did I know about Chronic Fatigue Syndrome except that it was a disease that was ridiculed, do you remember the jokes about it? The term ME much more aptly describes this disease, it is not just about fatigue, it affects the body on a deeply cellular level. It is basically cellular collapse of the entire body, and there is no cure and really no treatment for it. In fact it is very difficult for scientists to even get funding to do research into the cause, the treatment or the cure. This is a disease that needs more awareness... pronto!
I encourage you to watch it even though it will break your heart. How much do you know about ME? Do you know anyone who suffers from it?